Did you know there are 6,800 different rare diseases? Rare diseases aren’t all that rare: More than 25 million Americans have one. Today, as #RareDiseaseDay and the final day of #HeartMonth we’re introducing you to Connor Harrell, 10, who suffers from a rare heart disease -- Loeys-Dietz Syndrome. Loeys-Dietz Syndrome is a rare disease caused by the enlargement of the aorta – which delivers blood from the heart to the rest of the body – and it can lead to aneurysms. “Loeys-Dietz is a deadly disea
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Did you know there are 6,800 different rare diseases? Rare dise…
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Gwynneth may be the oldest person with Loeys-Dietz syndrome. Listen to why she traveled from California to be at the Second International Patient Meeting, What's New in Genetic Aortic and Vascular Conditions. | Loeys-Dietz Syndrome Foundation
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Gwynneth may be the oldest person with Loeys-Dietz syndrome. Liste…
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Learn more about Loeys-Dietz syndrome here: https://www.loeysdietz.org/what-is-lds-1 | Loeys-Dietz Syndrome Foundation
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Learn more about Loeys-Dietz syndrome here: https://www.loeys…
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23 reactions · 11 shares | Networking within the LDSF allows for...
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23 reactions · 11 shares | Networking within the LDSF allow…
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1.4K views · 35 reactions | Tammy gives us a glimpse into busy her life with Loeys-Dietz syndrome. That's her real. #loeysdietzrealreels #loeysdietzsyndrome #loeysdietzawarenessmonth #loeysdietz #loeysdietzawareness | Loeys-Dietz Syndrome Foundation | Facebook
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1.4K views · 35 reactions | Tammy gives us a glimpse into busy her li…
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1K views · 20 reactions | Networking within the LDSF allows for...
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Are you new to the LDSF family? Maybe you know of Loeys-Dietz Syndrome, but you don't know all about it... Check out this video we put together, just for you! Or maybe you're an expert on all things LDS... but you know your family and friends are NOT. This video is for you, too! Share, repost, and raise awareness 💙 Loeys-Dietz Syndrome has many medical characteristics that may or may not determine a true diagnosis. Some of them are aneurysms, arterial tortuosity or spiraled arteries, widely spa
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Are you new to the LDSF family? Maybe you know of Loeys-Dietz S…
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